Tag Archives: 2016

The Future and The Past

We no longer talk about the future beyond a month or so. Practically speaking, we don’t know how Brock will feel day to day or even throughout the day, so we live in the moment and don’t plan too definitely.

And there is always that knowledge that he won’t be part of the long-term future, of my future or our son’s. But also, I feel like I’m losing my future too. When he purged his book collection, I purged mine too. We’d lost that shared vision of a house with a huge library and there was no point in my holding on to books that were good but not good enough to be worthy of long-term storage.

It occurred to me the other day that, when Brock dies, the last ten years of my life will die too. There is no one else to share those memories and inside jokes and little references with. Every movie we’ve watched together or conversation we’ve had has created this language of shared experience, and I’ll be the only one speaking it, with no one to talk to who will understand. The phrase “she’ll do,” for example, has hilarious connotations only for us.

I’m about to lose ten years of my life and my future all at once. This is why “grieving” is a long-term stage. I’ve been grieving the decline and loss of my best friend for almost two years now, and the horror of it will only get worse.

What makes it harder is that I can’t really talk to my best friend about it, because he’s the one who is dying. He’s losing his future and past literally, not just in an abstract emotional way. I have the easier road. I can’t let the sadness take me down, because my responsibility and role is to help him through his and be his champion. It is a privilege to do this for him. I will enable everything that makes him happy and gives him peace.

Mushrooms and Hemp Oil and Prayer — oh my!

Seth Godin has blogged about how we can emotionally ignore ill-informed critics by giving them the same leeway as we would to a toddler. I think this same approach could assuage my fury when well-intentioned friends/family/acquaintances/strangers advise my husband to cure his cancer with oregano oil, marijuana and other tomfoolery.

(I would have posted this on Facebook, but some of my Facebook friends are among the offenders.)

My instinctual reaction, when yet another person corners my sweetie into an uncomfortable conversation about a miracle cure, is to break their nose, then offer the choice of a trip to the hospital or a spit poultice.

Why do some people think they have more expertise on cancer cures then the people who actually live with the disease? Which of us is meeting with oncologists and other cancer experts regularly? Which of us is more motivated to ask questions about potential cures? It seems obvious to me that the person dying from the disease will inevitably be more studied up on options than the random person who saw a poorly-sourced link their second cousin posted on Facebook.

I resist breaking noses because I understand that these ill-informed, often ridiculous suggestions for treatment are made with sympathy and sometimes love. We all want to help others in crisis. We want sick people to get better and live. There is that tiny (tiny!!!!) chance that the news clip we saw last week mentioned a treatment that the sick person hasn’t yet tried, and which might be exactly the thing that cures them.

Here’s my suggestion for anyone who wants to propose a “solution” to a sick person (or, in fact, to anyone in any life circumstance): ask if the person would like to hear any suggestions.

“I’m so sorry to hear that you’re not well. Would you like me to tell you about how my uncle survived a similar form of cancer? No? Okay.”

The most respectful “helpers”, in our experience so far, have been the religious people. I’ve been asked numerous times by churchgoing folks if they may pray for my husband. We aren’t religious (or even spiritual) but we always say yes. One couple asked for permission to “lay hands” on my sweetie, and when he said yes they stood and prayed on the spot, reaching to heaven for a healthy kidney to come down from the sky. He felt very uncomfortable, but it made for a great story and it was heartwarming to see how much these people cared.