Tag Archives: dying

Watching My Life Partner Die

Nurse Bonnie’s theory is that the infection Brock battled last week in the hospital drained the last of his batteries.

We came home from the hospital Thursday, then spent a wonderful Friday together. For dinner, Brock craved and got a McDonald’s Big Mac (I don’t judge; I enable). This was the last thing he ate.

Saturday was a lazy day, with Brock sleeping and me writing/reading beside him in our bed.

At 11pm I tried to give Brock his last antibiotic pill of the day. He sat up, still mostly asleep, and his mouth couldn’t remember how to drink from a straw.

Or maybe he just didn’t have the energy to suck from a straw anymore.

Brock’s parents and brother came over and for the next four days we made Brock as comfortable as we could while his body gradually stopped working.

Unexpected Thing #1: the full house

I thought I would want to be alone with Brock at the end, although of course I would (reluctantly) share him with his parents and brother’s family.

But that is not at all how I felt this week.

After Brock’s parents and brother were here, I invited his best friends to come say goodbye (and just sit in the living room) Sunday. On Monday I invited more family, and then more friends.

Because so many of us shared the work of adjusting Brock’s position in bed and moistening his mouth and changing his sweaty pillowcases and wiping his forehead with a cool cloth, I was able to just lie beside him and hold his hand.

Family made huge meals, washed laundry, swept floors, and even cleaned our bathtub.

Brock was never alone — and sometimes his room was too full to fit anyone else. It was wonderful.

In addition to sharing the work, I felt like everyone was sharing the grief.

Unexpected Thing #2: the parallels

I’ve read a lot about dying and grief over the past few years, and often read that the birthing and dying processes are similar.

But holy cow, there were so many moments where Brock’s dying room could have been a birthing room.

At one point, Brock’s dad was timing Brock’s breaths just like a man times his wife’s contractions.

My job was to tell Brock whatever he needed to hear, and hold his hand.

Unexpected Thing #3: the final exam

I’d inadvertently been studying for Brock’s death for months. All of a sudden he wasn’t able to speak or even communicate with his body, and it was up to us to decide what he needed.

I knew exactly how to give Brock a back massage that wouldn’t hurt his tumour-y areas.

I knew his favourite sleeping positions, to alleviate his cancer-caused back pain and bony body.

I knew that he hated having his feet touched.

I knew he didn’t want to be in pain, but he also didn’t want to be sedated, so we avoided giving too much pain medication.

I already had a Brock playlist on Spotify, so we could listen to all his favourite songs. We sang aloud to Mr. Jones (his favourite song) and I think he smiled.

I knew his favourite movie was The Two Towers from the Lord of the Rings trilogy, so we watched that with a room full of family and I fast-forwarded over the Ent scenes because they bore Brock.

And most importantly: I knew what he needed to hear, or at least I hope I guessed correctly. For four days I had to rely on Brock’s eyes and rare grunts to guess how he was feeling. I figured Brock was confused about what was happening to him, so I explained over and over again that this was not another infection, this was the end of his life. Our job was to keep him comfortable and pain-free, and his job was to let go whenever he was ready.

I promised him that I would read the financial management book he’d given me, and that I would do my best to control my spontaneous tendencies and ask trusted friends and family for their input in my big life decisions. I promised I would stick to our annual Lego budget.

No regrets

I’m so happy we went to the hospital last week to deal with Brock’s infection, even though it was hard on him. It would have been much worse for him to die feeling flu-sick. Instead, he was just very very tired.

I’m grateful we had all the conversations we needed to, while we still could. I never held back. I asked him all the hard questions and we talked about everything, from how to raise Isaac to the memorial scholarship/bursary we planned to start.

On Friday, which turned out to be his last aware day, I told him I didn’t want him to die and that I couldn’t give him permission to die. (These are the sorts of morbid conversations we’ve had regularly since he was diagnosed!) And then I thought about it a bit more, and retracted my statement. I said that I didn’t want him to suffer and so when he was ready to go, I would let him go.

Aftermath

I was very sad immediately after Brock went, especially when I had to tell Isaac his dad had died.

But by Thursday I was blank. I think I’m still in shock, even though we knew he was dying. Two analogies to describe this feeling:

  1. I feel like I’ve just ridden a rollercoaster. The ride just ended and the rollercoaster has pulled up to the loading platform. The brakes stop us. I’m not ready to stand up yet — I want to talk about the ride, to reflect on that highest peak and the sudden drop. And I have no idea what to do after I stand up.
  2. I feel like an iPhone that’s just been factory reset. A blank canvas. No personalized apps or custom wallpaper.

I can’t even read the grief book I bought in advance, because it’s describing a kind of gut-wrenching grief that I’m not feeling. I’m just empty.

To help work through this numbness, I’m trying to downplay my final memories of Brock, physically destroyed by cancer, and bring back my memories of how he was for most of our 11.5 years together. That huge smile and his sexy ass. His quiet brilliance. His enthusiasm for new projects and the first strawberry of the season.

I loved him so much.

Brock in 2006, on our first roadtrip together.

Dying is for the Young

I’m not sure how I feel about that title, but we’re going to go with it.

It occurred to me the other day how lucky we are (????) that Brock and I are only 38 and 37 years old, as we deal with his having terminal cancer. Specifically: those of us who will someday die a gradual death, due to aging or a progressive disease, will naturally get weaker and weaker as our bodies slowly fail. For someone as sick as Brock is, even having a conversation or sitting tires him out.

Sometimes he doesn’t have enough energy to swallow water.

Take a moment and think about how tired you’d have to be, to not be able to swallow.

Normally, someone at this stage in their life is in their eighties or older. Their spouse (if they have one) and friends are around the same age, with their own health challenges. Their parents are deceased. Maybe they have some children, or even grandchildren, who aren’t estranged, who live nearby or who are able/willing to relocate, and who have the work/life freedom to be able to take on the role of caregiver.

Brock, being 38, has a healthy, able-bodied wife of 37 to support him all day, every day. He has healthy, able-bodied parents, in-laws, a brother and sister-in-law. His friends are generally between 25-60 years old.

So when Brock needs help getting up from his Lazy Boy, I’m there — either to pull him up, or to carry over the walker that will lever him vertical. I can move his oxygen tanks up and down the stairs, no problem. I can carry a comfortable folding chair for him to use at the farmers’ market, or when we go to the park with Isaac, along with his bag of supplies.

If we need reinforcements, we have our family and friends on stand-by. Easy peasy.

Now consider the 87-year-old childless widower who is in the final stage of his life, who is sometimes too weak to swallow and who lives alone. Who does he have to keep him company? Who will switch over his oxygen source when there’s a power outage in the middle of the night? Who will help him up from his Lazy Boy recliner?

Hooray for Hospice

We did an on-camera interview with local filmmaker Nick Versteeg and Shelley from Cowichan Hospice on Friday. The video will be part of a fundraising campaign to build a proper hospice house with seven rooms for people who are dying and who (for whatever reason) can’t or don’t want to die at home or in the hospital. People and their caregivers will be able to stay there through the dying process, getting  the professional health care and support they need without having to be in an institutional, loud, chaotic hospital. Currently, there is only one full-service bed like this in Cowichan.

Victoria has a hospice house. I’ve heard only good things from the families in my support group that have used Victoria Hospice. Brock and I would love to see a similar resource in Cowichan, which is why we agreed to be part of their video project.

Because not everyone has a 37-year-old spouse to take care of them.

I see Brock losing his strength and mobility, and I suspect I’ll only really understand what he’s going through when I’m at that stage myself: with luck, at eighty-something. With luck, Isaac or a grandchild will be there to care for me at home, or I’ll have a hospice house to go to.

And sometimes I feel lucky that, even though I won’t be able to have Brock with me for the next fifty years, I’m able to watch him grow old now. It’s like we’re living one of those magic-realism Hollywood stories, Benjamin Button-style, and his life has been fast-forwarded while mine has stayed real-time. I am grateful that I’m able to help take care of the man I love when he needs me.

(For more information on the Cowichan Hospice House project, click here.)